Anyway, I had a pretty rough week last week. It was actually the culmination of a couple
rough weeks brought on by low white blood cell counts causing me to have to
skip a chemo treatment and have more of those ugly mouth sores as well as low
energy levels.
Last week I was just
exhausted every day. Monday I went in
for treatment and my counts were still just a little too low for treatment so
my oncologist had me briskly walk around the hospital for thirty minutes to see
if it would stimulate things so my count would go up enough for treatment. I really thought she was joking when she told
me to walk around the hospital then get my blood work done again. If that’s all it takes, why don’t they have
everyone do that before blood work? I
guess they expect it to only raise it a little bit, if at all. My level when I got to the hospital was 925
and you need 1000 to get treatment. I
did my brisk walk and ran up and down the stairs with my mom and Sean for the
required half an hour and a miracle occurred – I didn’t raise it by 75, I
raised it by 400! I was happily able to
get treatment and was told that if I am very careful about germs I can go back
to the gym. YAY!
Tuesday brought on more exhaustion and news that I now have
hypothyroidism. Really? Now I have high blood pressure and
hypothyroidism as collateral damage from the treatment. I never would’ve had either of these had I not
gotten cancer. It was disappointing news
to say the least. They called in my new
prescription and told me I need to take this new pill at 5 am then not eat for
two hours. Yes, 5 am! UGH!
Such is life though now and at least they caught it. They said the new pill would help to increase
my energy and my mood which were both being brought down by the thyroid
issue.
I also started my Neupogen shots on Tuesday. These shots boost your white blood cell count
so I won’t have to rely on walking the hospital and running the stairs before
treatment or missing treatment if it doesn’t rise enough due to the walk. The first week (each day Tuesday through
Friday) of the shots must be done at the hospital and then after that they were
going to let Sean do them at our house.
Leaving work early each day to take the hour drive to the hospital each
day was tiring as well and just added to my icky mood. The first day they showed Sean how to do the
shot then the rest of the week they supervised him while he did it. Thank goodness for him because I just don’t
think I could do it myself.
Later in the week I found out another young patient in a
triple negative breast cancer Facebook group I’m in lost her battle. It is always so sad to hear of another
patient passing, especially someone so young.
You always see yourself in that person too. It causes you to wonder why one and not the
other. What separates us? What saves one and not another? How long will I be saved? Will I be cured one day? Will it be due to a miracle? Will they find a cure and save us all? I really hope they do.
Thankfully this past weekend my mood and energy started to
improve dramatically. Saturday night and
Sunday morning I started to get some of the bone pain that they said to expect
with the shots but it wasn’t enough to dampen my mood. I’m just feeling so much better generally and
am happy that I won’t have daily visits to the hospital this week. Yesterday (Monday) I had chemo and my counts
were above 4000! That’s in the normal
range! NORMAL! That was the first time in months that I was
in the normal range, even if it was the bottom of normal.
Treatment went smoothly and I even had some company. My first
guest was a writer from the hospital’s magazine, “The Oncolyte.” They were interviewing me for a story to run
in the next issue. I spoke with her for
a while until my Benadryl started to kick in and I wasn’t quite as lucid as I
normally am. After a nice nap my friend
Jill was at the hospital waiting to get her treatment. She wasn’t hooked up to her IV yet so she
came to chat with me while I finished up my chemo.
It was a nice day at
the hospital and I was really feeling good for a change. I must admit the actual act of being at the
hospital and getting the chemo infusion is not a chore. It’s really not so bad. There’s tv, lunch, nap time. I’m getting my medicine. I’m healing.
What’s better than that when it comes to cancer? Well, maybe a cure.
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